Hospital Life

What a long week, full of meetings, at work and also at Sissy's school. I am blessed with a fabulous job with the best co-workers ever. My daughter has a couple of very supportive teachers that are good to her.

When Katie was with us, I had a good job that allowed me the flexibility needed to be at the hospital with her when necessary.

We spent a lot of time at UNC. Above is one of her favorite "works of art." Also, below is a "rambling" that I wrote one night while sitting in her room on the 7th floor.

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At Night

You lie there sleeping peacefully
In your hospital bed
It doesn’t seem fair that you are so sick
Again…
You don’t even realize that you are sick
You don’t let the cancer get you down
You are a miracle child
I sit by your bedside
It’s one a.m.
I am in the dark writing this
Only by the light from the stars
Outside the window
I am so sad tonight
Because I can’t accept the fact
That this time…
Well, you are strong
This is not your first “rodeo”
You play and color and draw
And write cards and notes
For the people you love
Always thinking of others
That is so like you
So brave and wise
Much wiser than I
Smarter than any of us
Please tell me sweetheart
What you dream about
At night
Is it the future, the past
Or just here, just now
Right where you are
I run my fingers through your hair
And it comes out in my hand
Golden curly strands, so beautiful
I can’t stand it, my heart hurts
So I stop
Sit up and clutch the curls to my chest
And think that I’d better keep this hair
Because . . .
I look over at you
You are like an angel, so beautiful
Perfect face
Your blue eyes are closed in slumber
Your smile is still for the night
You clutch your baby pillow
And precious bean bag blankie
What do you dream about
You are only five, Lord, only five
You smile in your sleep
Roll over, reach for me
And I go to you
Good night

for katie by mom
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